Tommys is a registered charity in England and Wales (1060508) and Scotland (SC039280). It feels very lonely and isolating. I believed at this point I had miscarried, they wanted me to come back I'm for a follow up scan. It was sick. I wasn't unduly worried at all. These were said to be soft markers fo a range of trisomies, 2 of which were incompatible with life. But you could see there was something wrong? We didn't feel we could tell anyone what was happening. We had to discuss what we wanted to do with the little body after delivery. We had so much power, we could decide that this little thing should die. I've realised that being a nice person is a luxury some can't afford. Another sick joke. I returned to be told they wanted to scan me again, another internal to see exactly what was happening. And the first few things they said it didn't sound as thing, as though things were terribly wrong. The pain was excruciating, but nothing compared to how I felt inside. The sonographer will be able to tell you the results of the scan at the time. We couldn't say we'd lost the baby, because he was still kicking away, but we couldn't pretend everything was fine, either. I was another one who did get bad news at the 20 week scan. Sometimes women were told that the sonographer had found a 'marker' or sign of a chromosomal condition and had to wait for an amniocentesis to confirm the findings. So had to come back in a week's time for a scan, which again is quite a common thing I found out. You know there's always that bit on the bottom of the thing, 'These are diagnostics, do not bring other children,' - blah, blah, blah.. it's not, you know, it's not a family outing kind of thing, but it feels like it. It was a bit worrying but on the plus side I got an extra couple of scans and an extra couple of pictures. And they, sort of two of them were looking at the scan machine and then they sort of switched everything off and said, 'Oh, I think we have, might have a problem'. If an abnormality is confirmed or suspected, referral is usually required, although some obvious major fetal abnormalities, such as anencephaly, may not require a second opinion (this should be decided by local guidelines). Eventually, the doctor finished the scan and said that some of the baby's measurements were very small. The next day, it was confirmed that my bloods had again dropped. Let a mum know you're thinking of them send one of our personalised Mother's Day cards today, Home As you felt that, you know, it was probably going to show lots of problems and it just wasn't what we wanted, but at the same time we needed to sort of see it and, we needed to prove it I suppose. The same anxious wait for a little, pathetic cry. Again, we weren't understood. unfortunately the 20 week anomaly scan can pick up serious issues, hearing heart beats at midwife appointment doesn't let us know what's going on inside the body in detail. See you in -. Next most likely is that baby doesn't co-operate and they can't see some parts of anatomy and call you back 2 weeks later just because they couldn't see (i had this but because twin pregnancy I was due to be scanned 2 weeks later anyway). Some people had underestimated how serious any abnormality found at this stage could be for the baby. That they could have spotted something, or not? In some very serious rare cases, where no treatment is possible, the baby will die soon after it is born or during pregnancy. Do you have any thoughts about that? Away you go'. I had to stop myself from yanking out the needle. Several women had taken young children with them to the 20-week scan because they expected to see 'nice pictures of the baby'. Just doing it. But it was very evident. We bought a two tests that evening (quite lucky as I messed the first one up!). 13/12/2020 20:45. I know it sounds odd that you want to hear that it's wrong, but you, you know it's wrong, and you, you want to be reassured either that it's okay or is there something seriously wrong. In some cases concerns in utero fix themselves sometimes needs treatment. And so, yeah we got to, carried on with the pregnancy, kept seeing the consultant, kept sitting in the waiting room outside, because there was a terribly long waiting time sometimes, depending on what time you had the appointment. As soon as we arrived, we were shown to this little room. I hated my body and hated every feeling I was having. How was that scan different from the dating scan? Abortion has never raised any moral dilemmas for me and I am an atheist, so there are no religious issues. Can't seem to find info on the Internet. I tried not to sit still for too long, because then I became too aware of the little thing inside me. No discussion, no quiet contemplation. It's, I mean you can't tell from these scans what you're looking at really, but I remember thinking, 'it just doesn't look quite right' or something, but I didn't give it much thought. We need to have your opinion'. . And so we talked about it euphemistically, never saying the word "research". The hormone levels had dropped, but they wanted to scan me again. I guess the morphine made it easier. When I told him what had happened, he refused to believe anything was wrong and said he'd sort it out when he came home. So, in the end, we said we would arrange our own funeral. I had no idea if we were doing the "right" thing. I was experiencing some light bleeding for the past few days. She didn't want to see the baby. It's a bit at the back of the brain and - no I can't remember what it is - it's called, it's something that's called Dandy-Walker mal, The Royal College of Obstetricians and Gynaecologists (RCOG) have produced a report on Termination of Pregnancy for Fetal Abnormality in England, Scotland and Wales (May 2010). Laura miscarried her twin babies in February. The screen may be directly facing them or at an angle. So he went out for a walk. I used to think the feeling of your baby kicking inside you and the sight of a foot poking against your skin were the most fantastic things in the world. It sounds crazy, but I just knew. Thanks girls, it's amazing how protected our babies are in there isn't it?! If this happens, you will be offered one further scan by 23 weeks of pregnancy. She advised I be referred to the EPU to be assessed. And as soon as she said those words, both of us were like, 'Well what's wrong?'. If necessary, you will be referred to a specialist, possibly in another hospital. Some people want to find out if their baby has one of the 11 conditions and some do not. It went from bad, to worse, to worse, to dire, then to better. For example, you may be offered further tests that have a risk of miscarriage. Our nightmare began when I went for my 20-week scan. To view this licence, visit nationalarchives.gov.uk/doc/open-government-licence/version/3 or write to the Information Policy Team, The National Archives, Kew, London TW9 4DU, or email: psi@nationalarchives.gov.uk. Reading individual, real-life experiences can be a helpful resource, but it is never a substitute for professional medical advice, diagnosis or treatment from a qualified health care provider. And, for a few hours, I'm convinced I've made a terrible mistake. Only this time, no cry came. Wishing to be anywhere, but here being told the same agonising truth over and over again. He sounded like a wild animal in pain, deep pain. I noticed the box of tissues on the table. So we decided that, to have the scan and we went along I think early in the week for that, and spent quite a lot of time with the consultant after that. I want to stop having such horrible thoughts. If you are offered further tests, you will be given more information about them so that you can decide whether or not you want to have them. I've been incredibly lucky to have such amazing support from Sam, my mum, and close friends and family. They would then re-test me in two days time. And it was Christmas Eve and at the time I didn't think, the sonographer did spend a little bit of time scanning us and queried my dates several times and then explained that she couldn't quite see the baby's heart properly and would we come back in a couple of days? It was positive, and I felt elated. It's quite common, perhaps 1 in 10 they find these, and within a few weeks they disappear. And at that point I don't think we, I don't think we realised that there might have to be a decision, because we'd talked about it with, with Down's and the other possible problems, but at this point it was, well okay what can be done to fix the problem - because yes the heart's not developing properly but there must be something we can do. But it is a soft marker for Edwards' syndrome. Soon, the doctor came and inserted the tablets that would induce labour. It seemed a very arbitrary system, and so you quite often sat outside in the waiting room for a couple of hours before you actually got to see the consultant, which was, seemed you know, I kind of remember thinking before we went in to see him on the particular day when we found out there was a problem, 'Why are we sitting here? So I took the test and jumped in the shower. Again the legs were quite twisted, they said that the baby's sternum was very short - things weren't in proportion you know - the head was quite large, the neck was very thick, there wasn't really like a neck as such it was just things were kind of - there were lots of things that obviously the consultant could see that we weren't aware of. Entering the labour ward, I waited for someone to say, "Go home, you are 16 weeks too early." The 18-20 week antenatal scan and further tests. I had a horrible feeling of relief. We've got the same battle scars. Sometimes it is difficult to get good views of a baby. So I was a bit ignorant of the kind of things, you know, what the scans were really doing - maybe it was, a bit na've I think. Our week-by-week PREGNANCY emails are a must for parents-to-be. However, a few hours later there was another shift change. Instinctively, did it feel right? We were told to go to the hospital immediately. I just want to be normal again. And I could see, before she even said anything I could see that there was something wrong with the heart. I think I don't everything just seems a real blur because it was, it was such a strange experience. I was young, I didn't need one. Health professionals use the 18-20 week scan to examine the baby's size and position, and also to check if his/her brain, heart, lungs and other internal organs are developing as expected. You have rejected additional cookies. I should stop being dramatic and pessimistic. They said the brain was okay -, We were in there for a matter of minutes, literally -, In and out. We understand the real meaning of "shit happens". Just that really! That he - I think I was 21 weeks and 3 days, and he was coming up at 19 weeks and 4 days, or something like that. And still we asked to see a, Impact of the 20-week and later specialist scans. For women who have been given distressing news about their baby during the scan, there should be a health professional available to provide immediate support. I managed to tell my mum, who said she would come with us to the hospital. Trying to carry on as normal, working and putting on a brave face. She wanted to have a look at the skull, which was the main thing, but she couldn't see it from where the baby was. Most scans show that babies seem to be developing as expected, and none of the 11 conditions are found. I would be put to sleep, and when I woke up I wouldn't be pregnant any more. Impact of the 20-week and later specialist scans
I was then told yet again bad news. All my plans were beginning to fall down. So it was, there was very, very little movement from the baby because I remembered first time round by that stage, you know, that the baby was quite big and it moved around a lot at a later scan. Any delay in receiving more information about the abnormality and its implications will be distressing for women and this should be acknowledged. And having read, since read my information on Edwards' syndrome, a good 85 per cent have problems with the heart. The doctor told me he was 98% sure this was a failing twin pregnancy. I'd had the scan in the scanning room, I can't remember what they call it now, it's silly, it's gone from my head. Or, at the very least, heart problems. Being deeply unhappy and kind to others at the same time is nigh on impossible. Nice people shouldn't hear about what we'd done. Instead, we were shown to a room slightly away from the rest of the ward and the midwife stayed with us to talk through what was going to happen. I was becoming numb to the whole process. It was probably all right but hadn't had any fluid in it at the moment. This is not what I imagined pregnancy to feel like', Baby Loss Awareness Week - Voice Five - Bryony Seabrook. I pray it's just her heart but I can't see anything else is wrong as I have been scanned by a consultant since I was 14 weeks and every time he has said everything looks okay and she is growing consistently. What were babys measurements at 20 week scan? After preparing myself to face having to take the medication. Others, including those who had been given leaflets to read about the scan beforehand as well as some who were health professionals, said that they had been nave about the 20-week scan. We had amnio and then spent a week in absoute anguish waiting for the outcome which was no trisomies. Wishing to be anywhere, but here being told the same agonising truth over and . Fine, go on my own. 80 percent of my pregnancies have ended in death and I felt like they were telling me those babies didn't matter. And I am slowly coming to terms with what has happened. Anyway we went in for the meeting with the consultant on this particular time, and we'd got to, I was 30 weeks pregnant by then. All women are offered a dating scan, and an 18- 20 week fetal anomaly ultrasound scan, in line with NICE and UK National Screening Committee recommendations. So obviously quite relaxed. Though the 18-20 week scan can detect when certain parts of the baby's body have grown abnormally, it may not be possible for clinicians to identify why it has happened or make a firm diagnosis based on the scan alone. And she sort of got up and walked out of the room and called someone in. It was all going wrong and I wanted to get as far away from the hospital as possible. Specialist scans had a powerful effect on some parents because they could see the baby more clearly and in some cases people recognised which parts of the baby's body were not working properly. No, you couldn't see there was anything wrong. The week that followed was an agonising wait. So at 20 weeks I went for my scan with my husband, with my daughter, to get our photographs. It doesn't remove the guilt, but I don't know what else to do. Thankfully I was met by an amazing sonographer, she was compassionate and understanding. Having the scan does not hurt but the sonographer may need to apply slight pressure to get the best views of your baby. My baby might have Down's syndrome. So we left it there, and we didn't actually think that there was anything really to worry about after that scan. Immediately I knew what decision we should take. Intellectually, I knew this was not the case. So carried on with the plans, and, you know, planning for the, another baby to come along and then we went for a 20- week scan which is obviously the big one and very exciting, seeing all the arms and legs and once again everything was going fine, 'Look here's the baby, here's the length of baby'.
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